To our horror, last night Ella started having seizures again. It could be that the eye phenomenon was a precursor to the seizures or just very mild ones. Since she has been growing a lot lately, it could be that her medication dosage is simply not adequate any more (I hope it is a simple explanation like that). We called the hospital and they recommended we raise the medication level.
This morning she had two more seizures. They leave her exhausted and us desperate. After the seizure her left side behaves as if it is half paralyzed, this goes away after a while. We are going to the hospital, Ella will have her blood test to see what the level of medication is and later we are meeting with the plastic surgeon.
Shana Tova.